IT IS SNOWING!!!!

Okay, I know it has been a while since I last blogged, but this is too cool to share! I can't believe we are having snow in LATE MAY!!!! I tried to post a picture but it didn't work.

Well, don't get you hopes up. I will try to write more often than I have been. I try to remind myself that this is a good form of therapy, but when I have so many mundane days in a row I think that people don't need to hear the same thing over and over again. But I promise I will do better. more than a couple of times a month anyways.

I am now living on the main floor of the house in what was the "guest bedroom". Mom, has worked her hardest to make it feel like my room and brought things down from my room. For example, she brought down a couple of framed pieces and hung them up and also a bulletin board,a couple of pieces of furniture, my TV, and my comfy recliner. Her and Dad also cleaned out the closet so that I have a place to put my clothes. I appreciate all of their hard work. The room is maybe a quarter the size of my old one, but I never used up all the space that I had, so it feels good to downsize.

I moved to the main floor because I am now totally dependant on my mom and dad for everything, i.e. going to the bathroom, taking a shower, getting out of bed, changing my clothes and many other every day movements, for example I need them to come and get things for me that are not in my immediate area, which must be a little aggravating for them. I believe they are sick of the phrase, "Can you come here for a minute?" lol. I have a table by my bed that has a few things on it like a clock, lamp, radio, and place to put a glass of water. I really need to engineer a new table with shelves so that I can reach more things.

Soon after I lost my legs I sat in my recliner for too long and ended up getting a pressure sore caused by not shifting or moving for a long period of time. Also, I have a tumor right under the skin that is rapidly growing and expanding into any facet of my lower back. Not moving and the tumor getting bigger created a "Perfect Storm" (so to speak), so I ended up with a five inch pothole with tunnels growing just below my skin. It is pretty gross and it has, and will take, a long time to heal and I am not sure it will totally heal up. My nurses up here said that they don't see very many pressure sores and the few that see saw never healed completely up.

It is because of this misery that I have to be turned every two hours morning, afternoon and night. Also, I am afraid to be up and around in my wheel chair for very long in fear that the wound would get worse. Over the last month or so it has started to heal and I hope that it continues to do so.

In the meantime I have taken up making "jingle boxes." They are plastic square panels stiched together. Each side is stiched in a different color, e.g. red, orange, blue, etc. Within the box is two jingle bells. These "jingle boxes" are eventually shipped by the church's Humanitarian Center to kids that have very little. It serves as a rattle and is also used to teach them colors. It makes me feel good because I can see the progress that I am making and I am doing service to those that are in need. I don't know who it is recieved by, but I hope that it is put to good use. :)

This last week Jerrod was able to come up and spend some time with me. We just hung out together. I taught him how to make a jingle box. When he left he took some supplies to teach Anna how to make them. :) We then put together a puzzle of Vancouver. It was so much fun to put it together because some of the places that we went to were on the puzzle. lol It also motivated me to get my pictures of Vancouver printed off and put together an album. I am really excited to do that. I have my picture printed. Now all I have to do is put the album together. It touches my heart that he is putting a lot of effort to come and hang out with me. I am so thankful for that. I am able to make even more memories that stand out and gets me out of my mundane schedule. We always have fun together.

I know that if my other brothers and sisters could do that I know that they would. Things are pretty tight right now and I get that. I love them all so much. I don't love one more that the other. I just love them for different things. :) I love my mom and dad too. lol.

I love you all.

Jenna Lee